Inside a Carer’s Mind on a Bad Day

This is what the insides of my mind look like on a bad day as a carer. It’s not always like this, but lately it is. It’s a jumble, because that’s the extent of my mental ability at present.

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17 Responses to Inside a Carer’s Mind on a Bad Day

  1. can says:

    Firstly, I’m very sorry for your troubles. It must be incredibly hard for you and your family. I read your comments on MM and your hatred of God in general and Catholics in particular was palpable. I wondered why. I found your post on your father … the apple of closeminded bigotry and prejudice hasn’t fallen far from the tree. You were every bit as brainwashed by him as you believe those who believe in God to be. A shame … and a disservice, considering how helpful a little faith could be in your present circumstance. Anyway, I now understand your smug comments … you know there is no God because your dad told you. Lol! I sincerely hope things turn around for you x

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    • Sharon says:

      Hi, Can.

      A genuine question: did you read the full context of the relgion series, or just that one post? Because I do actually approach things differently to my father, and I’m proud to say that he’s lightened up over the years himself.

      He actually allowed me to explore religion when I was older. I gave it a red hot go, and decided for myself it wasn’t for me. But I won’t go into that further, because it’s all written in the series.

      I’m sorry you felt my comments were smug, but I don’t really care. I’m sick of the cover ups in the catholic church, and don’t understand why catholics find it so hard to walk away.

      As for a ‘little faith could help your present circumstance’,I disagree. I really hope you’re not implying that we brought our situation on ourselves because we are non religious, because if that’s what you meant, then you can get fucked. If that’s not what you meant, then don’t get fucked:P

      As for you ‘sincerely’ hoping things turn around, I find that hard to believe. It feels more that you find this amusing.
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      • Sharon says:

        Also, I’d like to add that there were very good reasons for why he hated the catholic church. He is fiercely protective of my mother, and I don’t think he ever forgave them for how much they messed her up as a child. She used to get beaten by the nuns for every mistake she made with her school work.

        I don’t believe he or I, owes the catholic church any respect at all.
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    • Alison says:

      Whereas you know there is a gawd because some book written by a bunch of nomadic tent dwellers who thought the earth was flat tells you so. Hilarious!

      The catholic church has been raping children and covering it up for hundreds of years, and that’s just top of the abuse list. But you already know that. If you don’t hate them there is something very off with your moral compass.

      Blah blah, not all catholics are like this, taking it out of context. Bottom line if you choose to be associated with the Nazi party (like their soon to be ex pope) you will be judged as a Nazi. If you choose to be associated with catholic scum who rape kids and cover it up, repeatedly, you will be associated with them too.

      Nobody knows if there is a gawd but what we do know is: religion is man made (your xian stuff takes nearly all its myths from previous religions, very easy to find this, here is just one of hundreds of links: http://www.religioustolerance.org/chr_jcpa1.htm)

      We also know that over 2870 gawds have been worshipped and written about since the ancient Sumerians invented writing and xians (I am just guessing that’s your flavour, but I bet it’s a good guess) believe in one more gawd than non theists, that’s all.

      The reasons you have for not believing in Zeus and Thor are the same ones intelligent, rational people have for not believing in your Jesus guy.

      One great thing about the bible though is how nice and thick it is, and how thin the pages, if you’re going camping it’s magic for kindling and bog roll, should you run out.

      Look up Cognitive Dissonance. It explains why people like you cling to their religion, psychology has come a long way since religious lunatics have been prevented from slaughtering people for the crime of asking questions, making them uncomfortable and forcing them to think – at least in Western countries.

      Bottom line is that proof of gawd is on the person making the assertion. Onus of proof lies with the person making the outrageous claim. Just as if I were to tell you I turn into a unicorn at midnight, you would say “prove it” and if I started screaming “You can’t prove I don’t!” you would dismiss me. Which is why rational thinkers dismiss your unsupported claims.

      “That which can be asserted without evidence can be dismissed without evidence.”

      PS, absolutely lurve the passive aggressive x at the end of that comment. Brilliant. And before you can trot out that other old passive aggressive chestnut “I’ll pray for you” let me just add, thanks and I’ll think for you. Mwah! Mwah!

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      • Sharon says:

        Sorry Alison, I got your tweet (I think it was you?) and dug this out of the spam folder:) Will answer everyone later.
        Sharon recently posted..Inside a Carer’s Mind on a Bad DayMy Profile

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      • Sharon says:

        This gave me a good laugh, thank you! I agree with 99% of it, the only bit I struggle with is that I have relatives who are catholic and good people (after all, it was meant to be my ‘birthright’ to be raised as one! Thank god that never happened when we know what happened to catholic kids), so I do have to try to separate the religion from the person.

        I think what some people got up in arms about over at MM, is that one reader was questioning her ‘relationship’ with ‘god’, due to guilt over the vile acts committed within the catholic church.

        I was pointing out that it’s not really a ‘relationship’ (since god isn’t really real) so why would you choose someone you’ve never met and doesn’t exist over these heinous, criminal acts? It just feels like a no-brainer to me, if you’re conflicted about any relationship, question it and get out if need be.

        It wasn’t PC, but what if our being PC is enabling so many religions to get away with this stuff?
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      • nikki says:

        very true. i like “I’ll think for you.” =D indeed.
        this said, pls maybe research this germans pope’s history, as while it is easy to associate him w the nazis by his nationality, his actual association (and that of his family) was of pretty reluctant nature, given that he was basically a preteen drafted into Hitler Youth, then child soldier (or canon fodder) in the end of the war..
        there are ENOUGH other reasons to be very angry with him tho, indeed for his longtime reluctance to introduce real change into the catholic church, during his time as a cardinal and later as a pope, and yes, this involved also coverups of child abuse and the ongoing refusal of contraception in the face of the AIDS epidemic.
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  2. Robyn says:

    I can relate to what you are going through, Sharon. I’m the one with the mental illness as well as physical disabilities. I’m also a Carer for my partner who has Crohn’s Disease.
    Sometimes I wish I was hard-hearted enough to just walk away. There are days I want to scream, cry, bang my head on the wall because it all just gets too much!! Life is far from normal!
    Friends, hmm, lost a lot of those over the years, those who don’t want to even try and understand what our life is like on a day to day basis.
    Family? Same issues, they think we just make excuses to not travel interstate for family get-togethers. (Apart from the fact that living on pensions, we simply cannot afford it!)
    The you get ignorant twits such as CAN up there. Closed minded bigotry, you say? There’s the pot calling the kettle black!
    I have no time for religion either. Without going into details I can say I have had enough to do with “Bible Bashers” to last me a lifetime. Raised a Methodist, spent time in a Catholic Girl’s Home and then got caught up with the Jehovah’s Witnesses. Not one of those sects were there when I needed them, not a single God squad member lent me hand.. so as you said, Sharon, get fucked!!

       1 likes

    • Sharon says:

      “Sometimes I wish I was hard-hearted enough to just walk away.” yeah, those are the really bad days, huh? I think what frustrates me is that when I desperately need a break, it’s usually at the most demanding possible times (hence why I’m struggling in the first place) and I can’t just go for a break because I’m still needed.

      Then, I have a break when things settle down, which is nice to recharge the batteries, but sometimes it’s long overdue, which can be unhealthy to go on for that long like that? Can you relate?

      I haven’t really lost friends over this, it’s more that I’m choosy about the friends I make, if that makes sense? If I can tell someone thinks mental illness is codswallop and that the mentally ill should just get up and snap out of it, it makes too much of a mockery of everything we go through, so I think sticking around for a friendship with someone like that would be flogging a dead horse.

      That’s a shame about the family get-togethers as well:(

      That does sound as though you got a thorough education on quite a few religions first-hand! I don’t know a lot about the Methodists, but I have been hearing a lot about child sexual abuse cover-ups with the JWs a fair bit as well.
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  3. Oh my love.

    So very very hard.

    I joke to people that carers don’t have the luxury of giving up, or even suicide. We love those in our charge too much to let them down.

    And we get lost in the process.

    (and I am so sorry that you got blasted by morons on a post that was so personal.)

       1 likes

    • Sharon says:

      I know what you mean, it’s an idea that we don’t get to the point of entertaining. It is a very lost feeling. So glad to hear from other carers.

      As for the blasting, I don’t mind too much, but I think perhaps it would’ve been better blog ettiquette had he/she commented on a post on this blog relevant to her rant, rather than derail what was to be a conversation about carers BEFORE it even fucking started!
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  4. nikki says:

    ah. shame your post got a bit highjacked by the outrage on your opinion on religion here, huh? (tl;dr)but i admire you for doing what you do for your husband (and i have only discovered your blog, so i don’t even know). my son is on the hifu edge of the spectrum, so he is judged to not be needing the most intensive care (well..). but i sure know what it’s like to have this sense of having to be permanently switched on, and the whole “i must never die” in your head and this, noone from the outside can fully comprehend. it is very interesting to see what goes on in your head put like that, sometimes stuff like that makes more sense than an actual post.
    may the force be with you or something..
    it’s an intense life, but it’s ours and noone can tell you how to feel about it. all the best really.
    ps: i have equal views on the catholic church like you and have no shame admitting that I am rasing my son between agnostic and atheists beliefs. i have respect for the freedom of religion in democratic countries, but i am deeply disturbed by the LOUD voice certain christian groups are taking lately in public claiming not only their god but all that is GOOD, TRUE and HUMAN as theirs. they can go and STFU.
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  5. Larry says:

    Mental illness sucks. I admire your frank discussion about it. It is not easy with someone who is affected by it, it affects the whole family and is difficult to explain to other people. Just got to keep chugging along and take the good days with the bad.

       1 likes

    • Sharon says:

      You’re so right:) I think it’s good to air this stuff from time to time. Thankfully, my headspace has improved drastically since posting this. But it’s one that pops up now and then, as a big sign I need to look after myself more, I think
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